Why It Can Be So Difficult To Get An Autism Diagnosis

                

 

An autism diagnosis can still be difficult to obtain despite the studies that have helped people better understand autism. The reason is because there are many factors that need to be considered when making a diagnosis.

First of all, there is more than one type of autism disorder and there are other disabilities that are closely related to autism such as Asperger?s Syndrome and Pervasive Development Disorder- Not Otherwise Specified (PDD-NOS). Second, autism is particularly difficult to diagnose in young children, due to the fact that they are still developing speech and reasoning skills.

Therefore, since an autism diagnosis can be a challenge, as a parent, it is essential that you have your child?s development, social and communication skills properly evaluated and accessed by a doctor.

How is autism diagnosed? Usually an autism diagnosis is made when a person shows signs of 6 or more of 12 specific symptoms characteristic of the disorder. The 12 main symptoms are focused in three primary areas ?

1. Social interaction ? Autistics generally have little interest in others and pay little or no attention to those who may be present in the room with them, regardless of their age. They do not seek comfort if they are troubled or hurt and prefer to be on their own. On the other hand, autistics that do show an interest in social interaction have difficulty initiating contact with others and developing friendships. It is also common for an autistic to avoid eye contact.

2. Behavior ? Most autistics find change and new situations to be incredibly stressful. In addition, they tend to develop unusual rituals or routines and repetitious physical gestures such as rocking back and forth, flapping the hands, etc.

3. Communication ? It is estimated that 50% of those diagnosed with autism are unable to develop speech, and those who do cannot engage in long conversations unless they are based on extremely specific topics insisted upon by the autistic. Autistics often tend to echo words or phrases and have difficulty with pitch and changing the inflection of their tone.

There should be at least 2 symptoms present from social interaction, and at least one symptom from both behavior and communication for an autism diagnosis to be made. Hence, if a person exhibits some of the symptoms, but does not meet the criteria for an autism disorder, they may then be diagnosed with another similar disability such as Asperger?s syndrome or PDD-NOS.

The following are 5 tips parents can keep in mind when talking with a health care provider to ensure their child receives a proper evaluation:

1. Find out everything there is to known about autism ? In order to talk to doctors and receive the most effective evaluation of your child, you need to educate yourself about autism and know what to ask. You should never seek an autism diagnosis if you have no idea what the condition is all about. This will make it easier for a doctor to generate a wrong diagnosis.

2. Analyze your child?s behaviour ? Based on the information regarding social interaction, behaviour and communication above, carefully analyze and make note of your child?s behaviour in a journal. Study how your child interacts with others and present your findings to the doctor.

3. Find a health care professional who is experienced with autism diagnosis ? It is important to find someone who has had experience in autism diagnosis. You should not rely on the advice or diagnosis of a doctor who is not specialized in this field. The best way to find a doctor is to locate a local support group and find out what doctors other parents take their autistic children to.

4. Ask questions ? Asking and answering questions is part of effective evaluation. The more information you obtain and the more detailed answers you can provide your doctor about your child?s behaviour helps assist in diagnosis.

5. Get a second opinion ? If you don?t agree with a doctor?s opinion or want more assurance, don?t be afraid to question the doctor?s diagnosis or treatment recommendations, and seek the advice of another health care provider. Doctors are human beings, and can be wrong. Consulting with other doctors is not a bad idea.

Keep in mind that evaluation and assessment is not a fast process and is ongoing, even after an autism diagnosis is determined.

By Rachel Evans - For more information on how to go about getting an autism diagnosis sign up for a free newsletter

Managing Tantrums In Autism Spectrum Disorders When Consistency

                

 

When dealing with tantrums and difficult behaviors in autism spectrum disorders, using behavioral approaches alone can sometimes fail. What is the missing piece to managing these behaviors that a behavioral approach alone may not address?

To start, we need to look at the reasons for behavior. According to behavioral approaches, most of the behavior we see results from one of three reasons: a request, seeking attention, or a sensory reason. Let's look deeper at these three reasons for behavior and the ways we currently handle them.

Handling a request is fairly straightforward. To put it very simply, a request is usually something externally controlled by both reinforcing appropriate requests and not reinforcing inappropriate ones, such as a tantrum.

For negative attention-seeking behaviors, we can eliminate the behavior by not giving the negative behavior attention and give attention for desired behavior - very straightforward, and again, usually externally controlled.

The sensory reasons arise from both the external and internal events that a child experiences through the five senses, and may or may not be externally controlled. In all of these situations, our internal responses - our feelings and thoughts about events fire us into action. In stressful situations, the resulting "knee jerk" reactions are often difficult to manage with a purely behavioral approach for a few reasons:

1. Thoughts and feelings are often lightning-fast, internally-controlled events, therefore difficult to manage through external behavioral modifications.

2. Thoughts and feelings can't be measured, and as a result, behavioral approaches simply don't address them. It doesn't mean that these things don t exist or aren't important. It just means that they're left out of the equation.

3. Behavioral approaches address the cause and consequence of behaviors the beginning and the end. But internal responses (i.e. thoughts and feelings) happen in the moments between the cause and the consequence. By not dealing with thoughts, feelings and solutions at these moments, we leave a child to figure out solutions on his or her own.

4. Children on the autism spectrum have a limited ability to adapt to new or changing situations, solve problems, compare past to present, or see possibilities. Because of this, if a child never learns how to think through a challenging situation during the emotional moments, when faced with it again, the same behavior will probably repeat itself, no matter what the consequence, or how many times they've been through it before.

This situation calls for tools to deal with overwhelming thoughts, feelings and strategies in the moment before the tantrum, not just consequences after.

In the book The Explosive Child, Ross Greene talks about this situation. This book applies to any disorders that have limitations in problem solving and executive thought, including all PDDs, such as Asperger's Syndrome, PDD-NOS, and all autism spectrum disorders. ADD, ADHD, and various other developmental disabilities also share these problem-solving / executive thought issues and can benefit from using this approach, according to Dr. Greene.

In the book, first we pick our battles carefully, and then talk through our thought process out loud. This way our children can hear us think through situations before tantrums. This also creates a memory of how they triumphed in the situation without resorting to negative behaviors.

Progress is made in small increments, but as time goes on, tantrums should decrease, and you can even start to ask your child to contribute ideas about solving problems during those emotional moments. In doing this, you help your child learn how to solve problems and become confident about handling new, changing, or challenging situations. You'll combine the best of all worlds, to the benefit of your child.
 Sandra Sinclair is a parent of a child with PDD-NOS. Sandra assists parents of children with autism spectrum disorders to create a life that they love - life by design, not demands - through her 6-step program. She is also author of Newly Diagnosed Autism Spectrum - A free mini-course with 7 clear steps you can take to help your child with Aspergers, Autism, PDD-NOS, and other autism spectrum disorders. http://www.autismvoice.com/blog/7StepstoHelpChildrenwithAutism